Tuesday, January 9, 2007

january 9th, 2007 - Kaia's comment

Two steps forward, one step back....that's the way it seems to go in the NICU. We try to celebrate each little progressive milestone, but each little setback hurts my heart (and probably also gives both Grant and me a few new gray hairs!)

The big 'win' today was a normal brain scan. Whew!!! We know there's still a chance for some brain bleeding, but we've been told that a normal scan after almost 2 weeks in the NICU is a very good sign. The setbacks today were an increase in Lauren's oxygen level and a slight increase in A/B's. It takes a lot of effort for her to breathe with her underdeveloped lungs, so although she was breathing room air (aprox 20% oxygen) by her second day in the NICU, she now needs about 30%. This is a sign that she needs a little more help breathing, which may lead to the need for intubation again. But hopefully she'll hold her own. We've been told that A/B's are very common for little preemies and they will continue for many weeks. She will not go home until she goes for at least 5 days without an A/B, although many babies do go home on some oxygen. This is due to our thin high altitude air. Perhaps we all could use a little more O2 here in CO!

The highlight in my day was a second opportunity to 'Kangaroo' with Lauren this morning. I will try to routinely practice some 'skin-to-skin' with her over the next few weeks, as it seems to be very good for both Lauren and for me. The NICU nurses say that babies come to expect it. "After awhile she will wake up and seem to be waiting for you to arrive at your typical kangaroo time," says her primary nurse Bobbi (who we absolutely LOVE!)

The nurses at St Joseph's NICU are just phenomenal. Of course we have our favorites, but they are all so generous, gentle, knowledgable and caring. I love to hear them describe Lauren's little quirks - it makes me feel like they know her well, like adoptive aunts. They say: "She's always more comfortable on this side," or "She loves it when I give her a little breastmilk on a qtip in her mouth to taste - watch how she seems to lick her lips, Kaia!" "Oh, she often gets a little fiesty when we change her diaper. Just watch those long arms and legs kicking!" We have learned so much from them all and we owe them so much for their wonderful care.

I can forsee that it will be exciting but scary to take Lauren home, where we won't have the nurses and doctors at our backs or the monitors to assure us that she's doing fine. But still, I'm just so excited for the day when she can come join our family at home!

12 comments:

Matty Nez said...

Kaia,
The thought of taking your baby home is all you will think about for the next few months. Having some fear about it is also very natural. I remember when they were getting ready to discharge Walker from the hospital I asked my doctor if I could rent some of the monitors. My doctor laughed and then made the nurses take Walker off all of the monitors for two days before we were discharged so I wouldn't be so dependent on them. I still look at the pictures of Walker when he was so little and feel so blessed to see how far he has come. You will do the same with Lauren.
Julie

karen wilken said...

Kaia and Grant, I love that both of you are giving us your entries -- different views, both so loving -- and that the picture of Connor at the keyboard shows up each day. I'm sure he has no clue what's going on, but he must feel something big's happening. It all helps us see you as the young family of four that you are, with many wonderful times together ahead.
Love, Karen

Amanda Albers said...

Grant and Kaia ~
I so enjoy reading the blogs you two are writing ~ and am learning so much! You are so special to take time from all you have on your minds to post these phenomenal blogs. I check the website twice daily to find out how little Lauren Reese is coming along.
Lauren is so lucky to have been born into the Nesbitt/Histand clan. The love that exudes from these blogs is nothing compared to what she will encounter once she gets home and meets her big brother, ALL of her family and their friends.
She definately is a fighter ~ it is so amazing what they can do with preemies in this modern world of medicine. Hopefully, she will continue to gain strength as the days progress and will soon be attending her first prom! Bless her little heart!!
You all are constantly in my thoughts and Grant, I'm keeping the faith.
Love to you all ~
Mandy

Mark Salada said...

Hi Kaia & Grant,
We just learned of your blog today from Lauralyn - we're so glad to know how you're all doing. We're sending tons of positive thoughts your way. Lauren undoubtedly is picking up on all of your loving words, thoughts and touch. By the way, Mark did research with some of the top children's cardiac surgeons at Children's Hospital Boston and was impressed with the new surgical options for ASD (we're not sure how this is different from PDA but imagine that the procedures are similar). We hope it doesn't come to that, but modern medicine can do wonderful things! Take care of yourselves - Kristin & Mark

Maureen Prindiville said...

Dear Kaia and Grant,

We're anxiously clinging to every word you write. Remember to try and get some rest - you need all of your combined strength. All thoughts are with you... Maureen

Mr. Moe said...

Grant and Kaia,

Some of my students have taken an interest into Lauren's progress...so many people, strangers included, are pulling for her. Rebecca and I think of you, Connor, and Lauren daily. Thank you for the updates!

With love,

Aaron

Anonymous said...

We echo Matt's comments this morning and are so grateful for every step forward! Lauren already knows that she is dearly loved! Kaia, some of us can REALLY relate to the added grey hairs too... Somehow we all "earn" the wrinkles and grey/bald heads and it is a blessing.
What a fabulous day it will be, the day she is home with you! Now THAT will be a celebration! xoxoxo
Love and Prayers, Nora and Dean

Lauralyn said...

Not one to be at a loss for what to say :), I've been finding it so hard to put all of my love for you guys and my excitement for each of Lauren's successes into words! I knew you were something very special before your little fighter joined you, but now that impression has tripled... quadrupled... quintupled! And reading all of the beautiful comments from your friends and family, it is so clear that you 4 are surrounded by mountains of support, positive thoughts and love. Have a sweet and peaceful Kangaroo session tomorrow, Kaia.
Love, Lor

Lailak said...

Kaia

Molly said...

Kaia and Grant,
Every day I check your postings to see how little Lauren is doing. Thank you for taking the time to keep us all updated. Great news about the head ultrasound- what a relief! I have my fingers crossed for the PDA to close with the meds. Even though the idea of heart surgery on a preemie is scary at best, know that to these guys a surgical PDA closure is considered ROUTINE, STRAIGHTFORWARD and often is necessary to keep them progressing forward (Sad wanted me to tell you that, too :) Lots of love xox Dr. Molly

Anonymous said...

Kaia and Grant

The daily blogs are so appreciated since I don't see you every day Grant. Being able to follow Lauren's progress makes me feel closer to all of you. Know that I think of you all daily and send you prayers and good thoughts. If you need help w/Connor let me know.

Judy

Jodie said...

Grant, Kaia, Connor,
Congratulations on the birth of your daughter and little sister. The day to bring Lauren home from the hospital will be here before you know it.
Jodie