We apologize for not updating the blog this past week. We hope those of you that are still checking in to see how Lauren is doing will continue to do so. Our ability to update the blog as often as we once did is more difficult now that we (Kaia) have become more integrated into her feedings.
Okay, here is the update: Lauren continues to gain weight on a very consistent basis, and is now about 6lbs, 10oz. She now nipples all of her feedings, either from the bottle or breast, which is an unbelievably huge step, as it requires her to combine the skills of breathing and feeding at the same time. So, the medical team is thrilled with her feeding skills.
The only problem that continues to plague her is her inability to maintain a constant oxygen saturation. This most likely is the result of immature lungs, but also because of some acid reflux. Because she was fed through a tube for many months, the valve at the top of the stomach doesn't fully shut allowing acid to creep into her esophagus causing irritation. Unfortunately, when the irritation occurs, she forgets to breathe, which causes her oxygen saturation levels to plummet. However, she is on some new formula that is added to her breast milk that thickens it up allowing her to keep it down in the lower portion of the stomach. It seems to be working, as her "de-sats" are way down...
We did an overnight visit with her on Sunday, which didn't go all that well for many reasons, but it was valuable for us to actually get to experience how much potential care she will require once she gets home. It was a bit daunting to say the least. But, we don't have anything to complain about. We consider Lauren a blessing, and know that her health could be much much worse. We are lucky to have these problems we feel...
Kaia's parents and my parents are back from overseas. So, we now have lots of grand parental help! Connor is doing great, and has become a fixture in the park that is across the street. He can play in the sand, dirt, and grass for hours, and throws a tantrum when it is time to go home. He gets so dirty that he has earned the name 'pig pen' at home. He would much rather be outside with no jacket or shoes playing with a stick and some construction debris/trash than be inside with his toys.
Thanks for all of your support.
Grant
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4 comments:
Wow - What an amazing little sweetheart Lauren is. There will be a time when you will look back and hardly remember the worries. Remember the nurses will still be as close as your phone when you bring her home! It is so fun to hear about Connor's adventures...
Take care - we love you and keep you in our prayers. So glad all you grandparents are back.
Love, Nora and Dean
Pig-pen... I love it. It sure is a boy's paradise in that park! :) Good to hear the new "milk-shakes" Lauren is getting seem to be working. She's mastered so many complicated tasks in such a short time. No doubt she'll soon master this one as well. We think about you all lots and lots.
Love, Lor, Bill and Oliver (and the still-cooking Adelaide)
Connor and I had an amazing time at the zoo today while Kaia spent the day with Lauren at the hospital. We are so excited about Lauren's homecoming!!! Her room is ready and so are we!
Love,
GranD Histand
What an amazing journey little Lauren has been on. She has shown her determination... as have you... every step of the way. It will be wonderful to have her home, but also a little daunting. Fortunately, you have the help of grandparents and a loving community of family and friends around you. We will all be here to support you! And your nurses are definitely still a part of the team! You're in our thoughts and hearts.
Love, Lisa, Dave & Owen
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